Financials & Annuals | Celiac Disease Foundation (2024)

The Celiac Disease Foundation is a charitable organization with tax-exempt status granted under Section 501(c)(3) of the Internal Revenue Code. Our Federal ID# is 95-4310830. Donations are tax-deductible to the full extent allowed by law.

The Foundation has earned Charity Navigator’s highest rating of 4 Stars and the GuideStar Exchange Platinum Seal of Transparency, leading symbols of nonprofit accountability.

The Foundation is a recognized member of Independent Charities of America (ICA), a nonprofit association of America’s best charities, and Health & Medical Research Charities of America (HMR), a nonprofit organization that pre-screens high quality national and international charities.

The Foundation is a member of the National Health Council, participating in the Standards of Excellence Certification Program and demonstrating the highest degree of accountability and transparency.

Financials & Annuals | Celiac Disease Foundation (2024)

FAQs

Is the Celiac Disease Foundation legitimate? ›

The Celiac Disease Foundation is a charitable organization with tax-exempt status granted under Section 501(c)(3) of the Internal Revenue Code. Our Federal ID# is 95-4310830.

What is the life expectancy of someone with celiac disease? ›

If celiac disease is properly managed, most people diagnosed with celiac disease can have a normal life expectancy. However, if celiac disease is not treated with a diet that is completely free of gluten, then the damage that is caused to the small intestine will continue and it could potentially be life threatening.

How to interpret celiac test results? ›

What do the results mean?
  1. Negative. This means that celiac disease antibodies weren't found in your blood. ...
  2. Positive. This mean that celiac disease antibodies were found in your blood. ...
  3. Uncertain, indeterminate, or inconclusive. These terms all mean that it's unclear whether you have celiac disease.
Oct 4, 2022

Can celiac disease go away with age? ›

Unfortunately, no, you can't. 1 Once you've been diagnosed (and assuming the diagnosis is correct), you will have the condition for life. Years ago, doctors thought that only children had celiac disease and that children could outgrow it.

How close to a cure for celiac disease? ›

While there is currently no treatment for celiac disease, there are 24 potential therapies in various stages of development, according to the Celiac Disease Foundation. Notably, the therapies being tested are designed to target different parts of the disease pathway, Fasano said.

What is the only proven treatment for celiac disease? ›

The only proven treatment for celiac disease is adherence to a strict, lifelong, gluten-free diet. However, complete dietary gluten avoidance is challenging and a substantial number of patients do not respond fully, clinically, or histologically, despite their best efforts.

What triggers celiac disease later in life? ›

Celiac disease is caused by specific genes, eating gluten, and possibly by some other triggers such as childbirth, surgery, stress, or other autoimmune disorders. However, medical science is still working to understand the roles of these potential causal factors.

What is stage 4 celiac disease? ›

Of course, stage four is the most advanced stage and is not seen too often. In this stage, Orlando Gastroenterology Consultants of Central Florida see the villi are completely flattened, or atrophied. The crypts, or depressions, between them are shrunken too.

What celebrities have celiac disease? ›

List of people diagnosed with coeliac disease
NameNotability
Jennifer EspositoAmerican actress
Susie EssmanAmerican comedian and actress
Dennis HallmanAmerican mixed martial artist
Elisabeth HasselbeckAmerican television talk show host
31 more rows

What are the four markers for celiac disease? ›

Celiac Disease Tests
  • tissue transglutaminase (tTG) immunoglobulin A (IgA) and tTG immunoglobulin G (IgG) tests.
  • endomysial antibody (EMA) -IgA test.
  • deamidated gliadin peptide (DGP) -IgA and DGP-IgG tests.

What can be mistaken for celiac disease? ›

Despite awareness efforts, celiac disease is often confused with other gluten-related disorders — like non-celiac gluten sensitivity (NCGS) or a wheat allergy. Both seem similar to celiac disease, but are different conditions.

What is the golden test for celiac disease? ›

Celiac disease is a common autoimmune condition characterized by small intestinal inflammation and mucosal damage triggered by an inappropriate immune response to ingested gluten. Gastroscopy and duodenal biopsy are currently the gold standard approach to diagnosing celiac disease in adults.

What does a celiac belly look like? ›

The intestines make up most of the middle and lower abdomen, so “gluten belly” will look like any other type of lower digestive tract bloating. However, if bloating seems to be a regular or constant problem, that's a possible sign that it may be due to gluten intolerance.

Is celiac disease a disability? ›

Because of these special needs, celiac disease is considered a disability under the Americans with Disabilities Act. This designation is particularly relevant in certain public establishments, like educational institutions, from pre-school to college.

What are the worst symptoms of celiac disease? ›

Symptoms & Causes of Celiac Disease
  • bloating.
  • chronic diarrhea.
  • constipation.
  • gas.
  • lactose intolerance due to damage to the small intestine.
  • loose, greasy, bulky, and bad-smelling stools.
  • nausea or vomiting.
  • pain in the abdomen.

Do doctors believe in celiac disease? ›

Research now proves gluten can make people ill, even if they do not have celiac disease. Some physicians still do not believe celiac disease and/or gluten sensitivity are real.

Is celiac disease legitimate? ›

Celiac disease is a genetic disease that runs in families. You may have celiac disease and not know it because you don't have any symptoms. Some things that may make symptoms start to appear are: Too much stress.

Who is the best celiac doctor in the world? ›

About Alessio Fasano, MD

Fasano directs the Center for Celiac Research, specializing in the treatment of patients of all ages with gluten-related disorders, including celiac disease, wheat allergy and gluten sensitivity.

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